Tag Archives: human rights

America, Around Town, Earthquake, Kaskikot, Nepal Life, Reflections, Work

A House of Mirrors

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These past few weeks, I increasingly find myself reliving the morning of April 25, 2015, when my phone woke me at 6:30am. I rolled over and Prem was on the line: a 7.8 magnitude earthquake had ripped through Nepal. I stumbled to the kitchen table in my slippers and didn’t move for what seemed like days. The papers were covered with images of fallen temples that were whole in my albums, with tent cities at familiar outdoor intersections in Kathmandu, with maps seen from high above and covered in digital markings. It was a long time before anyone could capture photos of people, especially in the rural expanses of the country, which were accessible only by helicopter for what seemed like ages. But in my mind’s eye the earthquake was a long, long parade of individuals. Today, I reread the email I sent out three days later.

It is a strange feeling to find the whole planet in crisis. Population-level disasters of this scale seem to disproportionately fall upon the shoulders and homes and rivers of the world’s most vulnerable places, while the other places try to help. In the years I have worked in Nepal, Nepali people have plodded on through civil war, three major government transitions, annual landslides and floods and hail, the 2015 earthquake, water shortages and electricity outages up to sixteen hours a day for years on end, and of course, the daily vulnerability of chronic poverty, weak infrastructure, and floppy safety regulations. The road to Kaskikot has had three bus accidents in the time I have considered it my second home. I remember thinking after the earthquake, as I watched messages flood my accounts, that people didn’t realize how often Nepal’s communities were used to seeing things broken, taken, lost, or never having existed in the first place. The earthquake was unthinkably horrible. Yet for those who didn’t lose everything–people, entire villages–that trauma was largely swallowed within a few months by massive shortages of petrol and goods due to political instability and border closings. The summer brought deadly landslides. Six months later, most of the country was no longer discussing the earthquake.

These last few weeks have been an odd, house-of-mirrors experience. While Nepal is facing pandemic, New York City and Milan and Barcelona and Sydney are also facing pandemic. My colleagues are quarantined in Pokhara and Kaskikot and Tilhar, and I’m quarantined in Hartford, and Prince Charles is quarantined in London. The realization that anything could happen to anyone at any moment has set upon us all, a realization that seems to be expanding daily. And amidst a great deal of chaos and uncertainty and worry, I find myself in occasional moments of disconcerting calm. Things were always this way. Now they are simply unveiled. We are all the defenseless Other.

Now as then, there is great beauty to uncover in difficult times. In the months after the earthquake five years ago, we improvised. I have no idea how many kilometers Dilmaya and I walked. Practically speaking, I learned a huge amount about the contributions a small community-based organization like ours can offer in disaster management. At that time we found we were well placed to spend personalized time on unique household and community circumstances, to mitigate challenges that didn’t meet a universal disaster threshold but were extremely destabilizing for the specific individuals facing them. Our focus became “the lower percentage of damage:” the houses that were not fallen, but cracked and indeterminately unsafe. It was a life-changing experience.

Every day this week I’ve joined in a group call with my colleagues in Nepal as they work from home, developing a strategy to redirect our rural health care personnel from dentistry to coronavirus. Since we launched our Dental Hub app in September, hundreds of patients and their phone numbers have been entered in our database, so our first step is having dental technicians replace their weekly clinics with “phone clinics,” calling every patient in the database. We’ve created a script for checking in with each family to see how well they’ve been able to implement isolation guidelines and what if any obstacles are in the way. We don’t yet know how this will go or how useful it will be, but it’s something to do. It’s a way to be in community.

All that said…the 2015 earthquake was irreconcilably different than the looming crisis we are facing now. To begin with, the rest of the planet is occupied with its own emergency, not fundraising and overloading the aid channels in Nepal with variably useful assistance strategies. Second, Nepal’s health care system was inadequate to meet public need before coronavirus, and there is effectively no intensive care available for severe Covid-19 cases. So even though there are so far very few confirmed coronavirus cases in Nepal, I am still trying to understand how “flattening the curve” works in a health care system where the capacity threshold is fairly close to zero. We don’t know the answer, if there is one. I’m not sure yet if anyone does.

Like many of us, I can’t help but wonder how we would understand our society if we felt this vulnerable and interdependent all the time. It is deeply unfamliar to us in the dominant American culture–replacing the community of work-productivity with the community of survival. Confronting the primacy of the nuclear family, when that family is cut off from neighbors, schools, social supports, food production, occupation, and future planning. This discomfort feels worthy of deep and shared reflection. In the mean time, I have made a call list, and have been doing one quality catch-up each day with someone I’ve missed, or who I want to make sure isn’t alone.

For whatever reason I also found myself drawn back this week to this poem, written during the (still unresolved) family separation crisis at the US border in the summer of 2018. I hope to use coming weeks to catch up on past entries and continue posting about the unfolding of this pandemic Nepal on my blog. In the mean time, wishing all of you patience and resilience and comfort as we, as a world, navigate the weeks and months ahead.

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At the Base of a Tree

The cicadas came when I was five
behind the school yard.
I put my finger on one
and then I picked it up
it was like a fig, dark and rough.

At five cicadas were interesting, like figs.

Now I am much bigger
friendly, the little goat nuzzles my shoulder with his warm snout
soft, we are alive, together easily.
And then I press my eyes shut
as I capture the insect that has invaded this carpet, which is mine
because I own it.

Sometimes I wonder how I can find my way back
from the pliant kid to the figs to the cicadas, captivated
with all their legs, their slick ribbed shells, all their songs enchanting
the school yard
all chirping and chirping tickling my ears until my ears overflowed with music
amid the crunching leaves and delicate wings
a symphony, a society, a universe blossom
after seventeen years of silence.

Sometimes I wonder
what we are afraid of
why we crush things, bugs and leaves and oceans and people
when I was five, I used
just one tiny finger
to say hello.

 

 

 

Around Town, Nepal Life, Oral Health Care Project, Work

A Piece of Christmas Cake

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For about two years now, we have been hard at work lobbing the new province government for health policy that includes primary oral health care. I’ve found myself hesitant to blog about many of the twists and turns in this aspect of our journey because political issues feel so sensitive while they are unfolding. And yet this phase of our adventure has produced some of the most colorful, absurd, harrowing and triumphant experiences we’ve ever experienced. Advocacy is, after all, a combination of showing up at government offices, making connections, making connections from connections, inviting people out to see our work, giving presentations, writing policy recommendations, rewriting policy recommendations, cajoling officials for meetings to discuss policy recommendations, and drinking tons and tons of tea and coffee over many coffee tables. These activities are exciting enough in a well-established, stable government. We are working with a government that is has been in perpetual transition for decades, with roads that wash out, with wise men and power saris, with astrological events that dictate the movements of both presidents and wedding parties.

I mean, all kinds of things happen. It is a shame not to tell you about some of them, some of the time.

Recently, we had a breakthrough: Province #4, ours, re-established a previously defunct “Basic Oral Health Training” for primary care providers. We spent almost all of the summer of 2018 madly campaigning for this training. The five provinces of Nepal and the provincial government structure itself had at that time only recently been established – prior to 2017, the federal government was sub-divided by 75 districts – and it would still be some time before personnel had their job parameters defined in the new structure. But our efforts that summer eventually paid off, and recently, through a winding chain of events and people, writes and rewrites, submissions and resubmissions, and patience possible only thanks to some amount of beer, a province-level Basic Oral Health Training budget training descended from the heights of government.

The training is not actually designed yet, so it is fragile and easily gutted, but this also our first major policy breakthrough at a high level of government. It taught us a ton about collaboration, persistence, and the emerging structure of Nepal’s new decentralized governance structure. Even this small-big step would have been impossible to accomplish by working alone.

So this winter, our sights are trained on the Province Training Centre, where the official Basic Oral Health Training will be delivered. This training has a long history in Nepal that I will share at a later time; suffice to say that the essential focus of Jevaia over the last decade has been implementation of care after health care workers have taken Basic Oral Health training that’s provided outside our organization. So by nature, our role has involved a lot further training and refining of skills. If there’s one thing we’ve been up to our, um, teeth in (sorry it was too easy), it’s training and professional support for midlevel providers to do “basic oral health care” in Nepal’s primary care system. That’s why we exist, and it’s how all of our health post clinics and community programs survive against tremendous headwinds.

Now, as you can see this is all very serious business, and our recent meeting at the Province Training Centre rose to the gravity of the occasion. With this shiny, hopeful budget allocated, it is essential that we lobby for a training program that reflects what we’ve learned in over a decade of up-skilling midlevel providers to deliver rural oral health care. So we printed out materials. We reviewed key strategic points. We went to the Province training center.

“You guys!” Rajendra, our Medical Coordinator, cried as we crossed the threshold of the Province Training Centre, examining his feet with a mix of alarm and delight and curiosity that is unique in this world to Rajendra. “I’ve worn the office slippers!” He giggled, and then looked shocked, and then giggled again. Indeed, a brief review of Rajendra’s feet confirmed that he was in fact wearing a pair of the shower shoes we use inside our carpeted office, and his sneakers were still safely stowed on the shoe rack by the office door.

I began to giggle too. “Maybe nobody will notice?” I said.

“Sita Ram sir!” Rajendra announced to our Program Director, excitedly. “I’m wearing the office slippers!” He couldn’t help it. He’ll agree with me when he reads this.

We were led in to the office of the government’s oral health Training Coordinator, where we left our shoes and shower slippers at the door, conspicuously not blending together.

We had a lengthy, complex, and sometimes coded meeting with the Training Coordinator. We were thrilled to find out that a technical working group is to be formed and we are invited to send a representative. The Training Coordinator requested that we also submit an evidence basis for our recommendations, and I will spend the next week compiling a selection of scientific literature around an “augmented Basic Package of Oral Care.” (For you nerds out there, the BPOC was developed with the support of the World Health Organization back around 2003 and is well documented in the literature; meaning we didn’t invent it, our business is to translate it in to practice in the face of real-world challenges.)

From the Training Centre, we re-donned our shower slippers and moved to the Health Division, the government department the Training Centre sits under. There, at the door, we ran in to none other than our past Jevaia program director! Nabaraj now works as a training coordinator in the province offices – perhaps a hopeful sign for us. We were warmly welcomed and led in to a cavernous office with an enormous with a desk at one end, and, per Standard Operating Procedure, tons of couches arranged against all free wall space. The couches were populated by a dozen or so visitors, people we didn’t know, who were both together and separately in an ambiguous state of meeting with the official we had come to see: The Health Directorate.

We took up arbitrary seats on couches where seats were available. This scattered Sita Ram far on a westward couch, while Rajendra, Rajendra’s shower slippers, and I secured side by side perches on an eastward couch. From there on out, in order for us to talk to Sita Ram, we had to either sign or speak very loudly over cross-talk from the northward visitors, who occupied the longest line of couches and either were or were not meeting with the Health Directorate, and may or may not have all been a single group with a unified agenda. There was no way to tell. Luckily, our former director Nabaraj was able to sit nearby me, on the adjacent westward couch, with only a fat faux-leather arm separating us, which made for good chatting and time to assess the situation.

We remained in this configuration for some time, until the room quieted and, based on a cue I could not identify, the Health Directorate affably invited us to introduce ourselves.

All of the people on all of the couches remained at their stations as we took the floor from our arbitrary seats among them.

Sita Ram went first, and then Rajendra. And then it fell to me to introduce myself and provide a general history and outline of our project, and why we were at the Health Division. In Nepali, with all the important couches watching.

The Health Directorate was gracious and curious. He asked us a series of astute questions about the need for primary oral health services in Nepal and about evidence and evaluation for our project model. He has a PhD in the sciences and absorbed our answers thoughtfully.

“You are here,” he said, “at the right time.”

We held our breaths. This was a good start.

Suddenly, the door opened and a group of men walked in.

All the heads on all the couches rotated toward the door.

“Namaskar, sir!” exclaimed a young, brisk man at the front of the group. The Health Directorate rose to meet them.

“We have brought you” –the young man held out a package, importantly– “a Christmas Cake!”

A murmur rippled across all of the couches of people. The Health Directorate reached out to receive a festive box. He thanked the men profusely. Without disrupting our key role as a riveted audience, I was able to lean over to Nabaraj and deduce that the men had come from a local hotel where the government hosts many of its meetings and gatherings.

“A Christmas Cake!” exclaimed the Health Directorate. “How wonderful!”

“How wonderful!” hummed the Couch Sea.

It was decided in short order to adjourn to the next room for Cristmas Cake. The entire room of people rose and passed through a door behind the Health Directorate’s desk, which led us in to a board room with a long, shiny table. The Health Directorate sat down at the head of the table; Rajendra, Sita Ram and I took seats all the way near the other end, and the as-yet-unidentified substantial company filled up the positions in between. The hoteliers huddled around the Health Directorate and bowed their heads over the Christmas Cake box, which was opened delicately to reveal a white iced fruit-cake with a neat candy-cane trim.

Paper plates were produced out of nowhere.

The Health Directorate began the careful process of dividing the roughly 6-inch cake in to precisely calibrated slices for the large room of attendees. Each offering was gravely placed upon a paper plate and passed to the right. Each person then continued passing the plate until it had circulated the long board table and ended up with the person sitting to the left of the Health Directorate. The Christmas Cake circulation continued thusly until all had been served. To the best of my knowledge, there was not a single Christian in the room, including me.

“What delicious Christmas Cake,” we cooed in turn.

Back at the office later, everyone wasted no time in celebrating the shower slippers for their trip to the Province Offices today. “How’d it go?” the rest of the team asked.

“Amazing,” we said. “We have no idea what happened.”

I sat down at my desk to begin compiling our package of research articles.

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Nepal Life, Oral Health Care Project, Work

Mothers Just Up the Road

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Our most recent clinic launched in the village of Deurali, where Hira runs a clinic at the Health Post every Wednesday. We were in Deurali a few weeks ago for a supervisory visit–or more specifically, a veteran technician K.P. was visiting Hira for mentor supervision, Rajendra our medical coordinator was supervising K.P.’s supervision, and I was there to see Rajendra supervising K.P. supervising Hira. So as you can see we’re doing our best to address any issues around lack of supervision and monitoring for primary care operators in rural Health Posts.

Hira’s been doing awesome in her clinic and already has a week of post-certification professional development under her belt, but we’re still working on building the patient flow in Deurali. This is no surprise; everywhere in the world, people are slow to seek dental care, especially for preventative and early-stage treatment. Rural Nepal is no different, and Health Post dental clinics don’t get much traffic unless paired with strong outreach and a referral system. We’re still getting rolling in Deurali, and this month the local Team Leader, Prashanna, organized an outreach gathering for a local Mother’s Group where his wife is an active member.

We piled in to a car at the office and arrived in Deurali mid-morning, having looped through the neighboring village of Rupakot to pick up Kamala, a talented clinic assistant who works in the Rupakot dental clinic and came to assist Hira for the day. Hira packed up a field kit from the Health Post, and we unloaded the supplies a short walk up the road at the Mother’s Group community building. This building was damaged in the 2015 earthquake, so we found ourselves in a completely normal half of a building with half a roof. The other half was open to both sky and the sweep of surrounding hills, not to mention that the road had recently been bulldozed and taken a chunk of the hillside with it, so the concrete floor dropped off precipitously, in mid-air, creating the effect of a film set on the edge of a cliff.

Behind the half-building, people began setting up a plastic chairs and stringing up a tarp for shade. Because it was the first adult outreach program in Deurali, our two education coordinators Bidhya and Shreedhar had come from the office to lead the workshop and model it for the local team leader Prashanna, who will soon become Deurali’s master of ceremonies for such events. Bidhya and Shreedhar are also new to our team, so this was their first adult outreach too, and they’d spent a good deal of time going through our teaching protocols and creating clever new materials to use. Hira and Kamala set up the treatment area to provide free screening, limited treatments of fluoride varnish and silver diamine fluoride, and referral tickets to the regular Wednesday clinic up the road.

People began to trickle in, take their seats, and chat. When the chairs were full, Prachanna and the primary health worker from the Health Post kicked off the morning. Then they handed the session off to Bidhya and Shreedhar, who inaugurated their roles on our team by doing a phenomenal job by engaging the crowd in an animated discussion. They covered everything from oral hygiene to junk-food-free schools to explanations of Hira’s available services in the Health Post.

I really love this example of Bidhya working what’s called “people-centeredness.” People-centeredness actually specific a term used by the World Health Organization as part of its quality-of-care framework. But what does it mean in practice? Health care that is attuned to lived experiences, that is easy to relate to, that is compatible with the physical and cultural environment. People may not leap out of bed to go get dental care, but they often have no problem talking at length about their teeth and the stories inside of them. What I saw watching Bidhya and Shreedhar work the crowd was not a lecture, but a dialogue not so different from the way that Aamaa and I sit around with Saraswoti and Saano Didi and Maya Bouju in the evenings, cataloguing the day and comparing notes about the world. There is a wealth of available wisdom already present in any community.

After the presentation, people waited as long as four hours for a screening in the half-of-a-community building. There was a 104 year old man, a woman with a difficult home life that made it challenging to arrange an initial screening at the Health Post, and a series of patients perfectly timed for interventions recently covered in our Professional Development Seminar on Aging. Watching as residents passed the time in plastic chairs, waiting their turn and talking about their teeth and other life topics, I pondered the fact that the Health Post, which offers the exact same services plus more, with the exact same provider, every week and ten minutes up the road, has struggled with patient flow. But the plastic chairs under the tarp was people-centered.

Hira screened about sixty residents before the wind picked up and began blowing rain in to the wallless clinic space. Before we repacked everything, she gave out forty referral tickets and delivered a swath of preventive fluoride treatments. I think she’ll keep busy in her clinic the next few weeks!

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Kaskikot, Kaskikot, Nepal Life, Oral Health Care Project, Work

Aging

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The second half of our winter professional development is focused on treatment of older adults. Even though a lot of treatment that dental technicians do is in schools, during the weekly dental clinic at the Health Post, they mostly get adult patients. And since most rural adults have had little or no dental care, and likely weren’t exposed to fluoride toothpastes or other preventative measures for their first few decades of life, some of the conditions that present in our rural clinics are pretty extreme. Besides that, tooth loss in older age is common enough that it’s more or less expected.

Of course, our technicians can refer older patients to higher care, and they do. But following up on referrals isn’t always that easy, especially for older folks with reduced mobility. Not to mention that rehabilitation of many mouths we see in elderly patients would require months of ongoing, expensive, complex treatment even in a state-of-the-art dental hospital–something that’s simply is not feasible for the majority population even in a first-world city. So here we are in rural Nepal working in primary care, which is about disease prevention and improving quality of life. But save for the occasional extraction, older adults are mostly left out of the process when it comes to primary oral health care: directly related to the ability to eat, sleep, and participate socially. If we can relieve pain and preserve teeth longer, that seems like a solid contribution.

With this in mind, we wanted to develop a professional development workshop on how the simple techniques that we’re already using – glass ionomer, silver diamine fluoride – can be used to help relieve the diseases experienced in older populations in Nepal. By “we” I mean Bethy since she’s the one obviously who did this because I write stories about teeth and she is a public health dentist. And even if you’re not a dentist or especially interested in cariology, I have to say that how this turned out is really pretty cool.

A few years ago, Bethy and Keri took photos of about 65 people who’d had restorations done in our clinics, and we used these as the basis for a quality-of-care assessment. It resulted in a few different things. One was adding some missing instruments. Another was noticing an apparent pattern among older adults where, around middle adulthood, adult teeth begin to wear rather than decay. It might be caused by anything from an acidic diet, to abrasive brushing with spices, to a lifestyle change like a new medication. The lower part of the tooth near the gums wears down and become loose, causing sensitivity and difficulty eating, and gradually, the teeth simply fall out. These are the adults who, right now, are getting no care at all besides the occasional extraction.  They were the focus of our training.

Our technicians practiced placing glass ionomer restorations on the root-surface lesions, near the gums, that so often lead to tooth loss in older adults. Bethy explained how an event in the life of a middle-aged adult, such as an illness, can cause a simple change like dry mouth that alters the whole environment and leads to deterioration of a previously resilient set of teeth over the next period of years.

I loved this workshop. For the first two hours, instead of looking at teeth, Bethy brought in pictures of older people and the clinical teams simply talked about aging. What makes people old? Are all old people the same? Do they have the same priorities and daily demands and ideas of self? What do we assume when we see someone who we think is “old”? How does a person’s identity factor in to how we work with them to improve their lives? What is our responsibility to someone’s dignity?

In preparing for the workshop, Bethy and I mined our respective photo archives for pictures of elderly people in Nepal and Cambodia. One by one their faces stared out at our group of clinicians, suddenly daring: Who do you think I am?

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In the beginning, most participants had a sort of default position that older people are weaker and less capable of handling dental treatment. But as we went through the photos for well over an hour, stories blossomed. In some cases, they were people whose backgrounds we knew- my neighbors in Kaskikot, steely women I’d photographed during our work after the earthquake in 2015, caretakers and weavers and shopkeepers who’d given interviews in Bethy’s surveys in Cambodia. Bethy used a clever framework called “Go-go, go-slow, no-go” to talk about what each of these people might be expecting or hoping for from a medical professional. I got to laugh about how Hadjur Aamaa has basically no teeth left and gets around pretty slow, but she’ll put one foot in front of the other to get to the house and then frets the entire day, every day, about the dishes or the peas that need to be shelled; it is absolutely vital to her human essence to be busy with something useful. By the end, our clinical teams were musing over what their patients might be thinking about, who they depended on, and who relied on them, what made them human and alive in the world. This was probably a go-slow patient, like Hadjur Aamaa; this one likely a go-go patient ready to sit there all day and get her teeth fixed; this patient probably wasn’t really about treatment, and mainly needed to have his discomfort acknowledged.

The next day, we returned to the same school in Kaskikot to treat patients age 45 and over. (We’re in rural Nepal, 45 is approaching the pre-elderly group…60 is safely considered “aged” and the point is to catch people BEFORE their teeth are gone.) It was exciting to see the same situations we’d learned about the previous day in the real lives of real people and to be able to offer simple treatments that have the potential to forestall tooth loss for years. The teams continued using the App, entering patient data digitally along side the paper forms.

While patients were waiting outside, the father in law of our local Channeler came by for a checkup. I’ve been to see our Channeler a few times – she lives down near Laushidunga, in the direction of Sada Shiva where I taught primary school for a year.  The story that’s told about the Channeler is that she suffered terribly from a kind of delirium for a period of time. She was treated in a hospital, but nothing helped. Then she began to channel spirits. She rebalanced. People travel from all over to see her; I’ve brought a handful of visitors there to connect with people they’ve lost.  Before Bishnu left for the U.S. in 2008, she went to see the Channeler to connect with her father. The Channeler’s husband has a bum knee, and once I gave him my knee brace from CVS, and he always greets me with an old familiarity when we meet in the road up in Deurali.

Anyway, at some point in the afternoon I couldn’t find our technician K.P., and I walked outside to find he was having his palm read in the waiting area. The Channeler’s father in law spent about an hour reading almost everyone’s palm for fifty rupees each. Everyone–our office staff, the field teams, the schoolteachers and other patients–exclaimed over the things he knew: who’s father had died young, who was still to be married, who was destined to successfully stay with one line of work for a long time (one of our clinic assistants! yay!). I didn’t get a turn because by the time I was ready – I’d had my 50 rupees in my pocket for like an hour – he’d had enough with palm reading. Palm reading was over.

Still, my most favorite patient of the day was a 93 year old woman who arrived alone. She was frail, used a walking stick, and barely spoke to anyone even to ask them to move out of the way as she plodded through clusters of people like Moses parting the sea. She wore a jaunty white knit cap that stuck up boisterously on her head. Her entire mouth was completely empty except for one jutting molar with an expanse of exposed root.

“How can we help you?” Hira, the Deurali technician, asked.

“This tooth hurts,” the woman said simply.

 

Hira treated the one tooth with silver diamine fluoride, a completely painless procedure that will hopefully preserve it a while longer and ease her suffering. Then the woman stood up, picked up her walking stick, parted the seas and went home without a word.

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Reflections, Uncategorized

Worry For My Sons

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I’ve just come back from my third visit to Cambodia, and each time I expect to write about it. I’m no qualified scholar of Cambodian history, but I spent a short time working with Cambodian refugees in Hartford and two months researching the Extraordinary Chambers, or ECCC, the war crimes tribunal created to adjudicate the crimes of the Khmer Rouge.

In August 2017, I visited the Tuol Sleng Genocide Museum in Phnom Penh, where I filled in the mental scaffolding I’d established by standing outside of empty torture rooms and running my eyes over thousands and thousands and thousands of names, knowing they would vanish from my memory. 15,000 people were imprisoned and killed at Tuol Sleng, which had once been a high school. I lit incense in a somber memorial room at the end that is filled with skulls.

Sometimes it seems that the cruelties of history are mostly remembered through their persistent pain, despite our best efforts to know them through redemption.

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“What do you think of Cambodian politics?” asked my tuk tuk driver today, on the way to the airport.

“…What do you think?” I replied carefully.

“No good,” said the driver. “Not much has changed.”

Motorbikes and trucks and cars and luxury sedans jockeyed for space on the highway, pressing in on the open sides of our tuk-tuk, where I had my leg through the strap of my bag after twice having items snatched off of me by passing motorists. It seems hard to argue that not much has changed. When Phnom Penh was reclaimed from the Khmer Rouge in 1979 after four years of destruction and enslavement, the rubbled city no longer had electricity or plumbing or safe water or schools or working telephones; the use of money had been abolished. Nearly a quarter of the Cambodian population and most of the educated class had been slaughtered. There were at total of seven lawyers left in the whole country to rebuild the government. Working off my not-particularly-relevant experience of what it’s like trying to develop infrastructure in Nepal, I find it absolutely astounding what Cambodia has rebuilt in just four decades, albeit under an authoritarian regime.

I guessed my tuk-tuk driver to be in his early fifties, old enough to have been alive during the genocide. I wondered what he wanted to tell me about.

“Where were you during the war?” I asked.

“In the province,” he said. “We planted rice, you know? Planting all day. All the kids slept together in a large area, on a rough surface. My skin got very irritated on my whole body. We had no rice to eat. We only ate porridge.”

“How long did you do that for?”

“Two years,” he said. “I was eight.”

I learned that the driver had one sister and five brothers, and I wanted to ask how they had fared, but didn’t know if I should. Many children whose stories started this way lost their entire families under the Khmer Rouge, sometimes before their eyes.

“What do you think is the biggest problem for Cambodia now?” I asked instead.

“Education,” the driver stated firmly. I learned that he had been able to pick up his studies again in 1982. That Cambodia has struggled to rebuild its education system is no wonder. In 1979, there were so few intellectuals left alive that a former math teacher, Chan Ven, was put in charge of rebuilding the Ministry of Education. The three-decade old United Nations, with its dominant American, British and Chinese powers, opposed the new Cambodian government because it was backed by the Vietnamese. So after receiving more American bombs on its soil during the Vietnam war than Japan received during World War II–an act that won Henry Kissinger the Nobel Peace Prize–a traumatized Cambodian populace was left to prosecute war crimes, reconstruct the government, and reestablish basic institutions without the help of international human rights bodies. During the Cold War, the Hun Sen military regime that liberated Cambodia from the Khmer Rouge was systematically and repeatedly denied U.N. support, which was deferred instead to the Khmer Rouge in exile.  To this day, the regime continues to run the government and suppress opposition.

My tuk tuk driver took his gaze off the road and turned his head toward the side, maybe only because I was seated behind him, but it made it seem like he was looking out at the tall buildings around the highway. “My sons are studying law and engineering,” he said. “I worry about them.”

Last Saturday, a bunch of us took a long ride out to see the new Win-Win monument. The tower was recently built to commemorate the end of civil war in Cambodia in 1998, when outlying factions of the Khmer Rouge finally entered in to an agreement with the Hun Sen government, bringing about the end of decades of violence. The monument is built of intricately carved sandstone and polished granite, and in many places is still under construction even while throngs of mostly Cambodian visitors visit each day.

What most caught our attention, though, was a lengthy retelling of Cambodian history carved in to stone panels around the base of the monument. It starts before the genocide and continues for probably a quarter mile or more. The story is portrayed with a nationalistic fervor that is not subtle, and the monument also sits across the way from a large athletic complex being built for the 2020 ASEAN Games. It is clearly a display of political pride and might. One might say unvarnished propaganda. On the ride home, we found ourselves talking about the importance of uniting narratives in national identity.

But before we left, we trod through the entire narrative display panel by panel by panel, slowly watching sun change its shadows on the carved faces. One, near the beginning, captivated me for some time. It’s intimate brutalities are historically accurate.

“During the war,” said my tuk tuk driver as we reached the airport, “it was just me and my sister. We were separated from our parents. Then my mom had five more children after it was over.”

I expelled a sigh of relief. “So your family survived?”

“Yes,” said the driver. “Five more children!” he chuckled. “And I’m the eldest.” He stared at the road ahead, thinking a swirl of thoughts I couldn’t intuit. He seemed to want to discuss it with me during the thirty minutes we would know one another. “You have freedom in America,” he said, shaking his head. “I just…worry for my sons. And their education.”

“They sound very smart,” I replied. At the time, I assumed he was worried about affording his sons’ education, or about whether they would be successful in their pursuits, and maybe that is he that is what he meant. But it occurred to me later that, maybe not.

We arrived at the airport, and the driver dropped me off, and rode back in to the traffic.

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Kaskikot, Nepal Life, Oral Health Care Project, Work

Professional Ceiling Clouds

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For the year and a half, we’ve been extremely lucky to be able to provide bi-annual professional development for our dental technicians and clinic assistants.  It has quickly become one of my favorite parts of our project.  Jevaia dental clinics deliver the Basic Package of Oral Care, a collection of dental procedures that was designed in collaboration with the World Health Organization for limited-resources settings.  The BPOC was developed by Europeans, and it has mostly been used in developing world settings as aid or transient care.

Since we train local dental technicians to provide the BPOC in Health Posts instead of temporary camps or outreach programs, we’ve had the chance think about applying it as a sustained primary health care strategy–especially since we started working with Berkeley, Dr. Bethy and Dr. Keri and other collaborators in 2016.  I suppose that kind of thinking is one difference between aid, or any kind of temporary relief, and human rights, which entitles people to a consistent standard of health care.

Our past three professional development workshops have focused on the use of Silver Diamine Fluoride; infection control tailored to rural Health Posts; and treatment planning (one thing about a stable primary care provider is: they can actually plan!).  This summer, Dr. Bethy is teaching our professional development on school-based treatment planning, so we can shift to a more systematic school-based oral health care model with local dental technicians.

Dental technicians in JOHC already conduct monthly school seminars to do school-based screening and treatment for children and parents.  We call these “seminars” rather than “camps” because they are run by a local provider and they help connect people with the Health Post dental clinic. Unlike most “camps,” seminars don’t aim to treat as many teeth as possible in the shortest time, but to build relationships with the technician and raise public support for a government dental clinic and community outreach programs.

Our 2018 summer professional development was seven days long for veteran technicians and ten days for new technicians. It kicked of with technicians and assistants examining photos of real ART fillings (like the kind they do) organizing them in to acceptable and unacceptable outcomes. Then the clinicians had to use the photos to diagnose why the unacceptable treatments had partly or fully failed, which lead to a review of practice technique. It was really gratifying to see how this impacted everyone’s thinking a few days later, when we were back in a school placing fillings.

Since the BPOC was originally conceptualized as crisis management, a challenge of our project establishing a quality of care standard in a stable primary care setting. At this year’s workshop Bethy helped introduce a competency framework.  During the three days of classroom work, our new technicians supervised old technicians in a “simulation seminar” where they had to demonstrate each technique using the competency checklist.  When we moved to the three-day school setting with live patients, new technicians were supervised through ten of each procedure and had to pass the competency checklist ten times.  Veteran technicians performed one of each technique under a doctor’s supervision and we used the completed checklists to award “competency certifications” that are valid for 18 months.  We even created a framework for technicians to review their competency certification every 1-2 years.

 

 

 

 

 

 

 

Overall, the workshop was meant to guide our clinical teams toward a more rigorously informed, holistic approach to school-based health care, where JOHC technicians work as members of the primary care system rather than visitors. The training emphasized taking time to slow down and connect with patients rather than blowing through a line at the door.  Dentistry can be scary and rather than jumping straight at a kid’s teeth, the intake leaves time to comfort frightened children and to learn about their lifestyle habits and disease risk factors. In turn that information is used to provide more complete and well-informed care, instead of just treating as many teeth as possible. It seems obvious, especially for primary care practice, but in reality that’s not usually how dentistry is done in our setting (or often, in general, if we’re being honest). As part of this, the clinical teams spent a good amount of time reviewing cariology (the biology of oral disease) which unlike the practicalities of how to mix cement and apply it properly, informs which techniques should be used when.  In other words, without adding in more high-technology interventions, we are focusing on more effective deployment of the conventional BPOC.

For me as a non-clinician, it’s super interesting to see how these minimally-invasive techniques can be used not only for emergency management of foregone problems, but for early intervention and prevention of disease in the whole child.  In all children, actually.  This same package of care can be used in service to population level public health needs where resources are a practical limitation, and yet there has been little focus on applying it that way. My dream is that one day it will be rural technicians and assistants presenting to academics at conferences on how they’ve adapted and improved these innovations to benefit their communities in the real world.

An incredible thing happened on the third day of our practice seminar in Kaskikot.  The school we chose is next door to the Health Post.  The third day was reserved for parents so that technicians could apply the training concepts to adult patients.  I was waiting out in the stairwell when suddenly I saw a face I could never forget: Nisha, one of the students I taught for a year at Sada Shiva Primary when she was in fourth grade, a million years ago.  It was with Nisha and her classmates that Govinda dai and I ran our first ever school oral health program back in 2004.  At the end of that day, we took a photo of all of us in front of the Kaskikot Health Post, which at that time was just one simple building that today is fully dedicated to our Dental Clinic.  Nisha had come to our seminar because her daughter is a student at the school where we were running the training in 2018–with five dental technicians, seven assistants, and an international expert in public health dentistry as trainer.

 

 

 

 

 

 

Finally, the icing on our professional development cake was a world-class makeover for the Kaskikot Clinic.  My friend Maelle who lives in Pokhara started an organization called We Art One that paints murals and does art programs in schools.  We asked We Art One to turn our Kaskikot Dental Clinic in to something bright and welcoming.  They took it next level, putting this exuberant mural on the outside and literally building a ceiling mobile inside for patients to gaze at while lying in the chair. It’s made from hand-cut wooden clouds that Maelle painted.

I know not every rural Health Post in the world can have clouds and rainbows hanging from the ceiling.  But I think they all should and I think we should try. The only reason we need is that every patient in the world is a person.  Those of us with choices would never choose health care in an unfriendly, cold or unwelcoming environment, especially for medical treatment that can be scary like dentistry. I don’t know why we seem to believe in some kind of false economy that suggests it’s not realistic to afford that dignity to everyone.  This beautiful artwork was not expensive or difficult; it was just a decision.  It mattered more than doing something else for some other purpose.

So that was our summer.  Two new clinics and nine veterans are open for business, if anyone out there needs an appointment!  Come visit us soon!

2004:

2018:

 

 

 

 

 

 

 

Oral Health Care Project, Reflections, Work

You’re White. It’s Fine, But Own Up.

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It’s no secret that I am not a big proponent of health camps – for all the obvious reasons.  Despite the very quantifiable benefit of a rapid delivery of emergency care in remote places, we’re working in a different space, trying to uproot transience, lack of accountability, saviorism, and the indignity that in the final reckoning still goes with things like…well, health camps in rural developing world communities.

I know this seems unrelated, but I remember a day back in 2004 when I had made my morning run to the junction at Naudanda, and a bus was just pulling up along the Bagloon Highway.  Some tourists got out and they had a collection of enormous plastic bags from which they began extracting articles of clothing.  A crowd of people gathered around, reaching for the anonymous pieces, irrespective of size or relevance or history or purpose.  Just in case something was useful.  As I stood watching, my running shoes expelling wafty dust from the dry road, there was no analysis or judgement that went through my head; I was just frozen by a wave of shame in my heart.  For the indignity, the dehumanization, the unspeakable power differential before my eyes, in which I was complicit.  For the participation we are all assigned before we’ve even arrived: savior, beggar, observer.

There was never a time in my life when I thought, you know what my passion is?  Dentistry!  Working in oral health was something that grew out of being assigned the observer role, which turned out to be very uncomfortable.  I’m more in the business of looking at casting and lines, of trying to rewrite parts of the script.  Oral health is an ideal area to be working on this because disease is so prevalent, chronic, and preventable, with services disproportionately skewed toward upper classes (globally, not just in Nepal). This is an area where it is entirely possible to create a system that does not rely on helicopter interventions organized to address the greatest volume of teeth, but relies, instead, on structural accessibility and strong public health policies.

I’ve had a decade and a half to grapple with the problem of myself as a white person working in an underprivileged country.  What I realized pretty early on is that the only way to handle that is to embrace it with all four of your limbs and hang on tight for the whole ride. Centuries of colonialism have conferred on my skin and nationality a power and predicament that none of us, in the current act, created or can do away with, which only leaves us the option to be honest about the whole clumsy issue.  The way this translates is that I think carefully about when and how I show my white face, and in fact, this is not an uncommon topic of discussion in our office when we are planning fieldwork. Over the years I have mostly built myself into a behind-the-scenes role, while Nepali people fill all the stage characters. But when it’s strategic, our team openly brainstorms over how my whiteness and Americanness (two, not one, power plays) can be leveraged to bring legitimacy to others or bend things in favor of a local agenda. That is what these privileges should be used for.  In fact, shirking that opportunity seems almost as problematic as not knowing when to stay out of the way.

So, if you are staying with me here, we have on one spoon some peanut butter (health camps, with their historic problems) and on the other some jelly (colonialism, lending power and privilege to white foreigners), and we are about to make a kickass sandwich.  Are you ready?  Welcome to the promotional community-based dental camp. We did this last year in Hansapur, almost by accident, when we arranged for fifteen foreigners to go do a survey, while six Nepali dental technicians set up a field clinic and treated 300 people. The result was that Hansapur asked us to help them start a local dental clinic and school-based oral health programs with providers of their own.

YOU GUYS, we thought. This is a good idea.  This is an excellent use of a brigade of white people.

So this year, for Nepal Smiles 2.0, we flipped the agenda.  The purpose of the camp is promotional, and in the mean time, we’ll do a survey, treat some patients, get extra supervised field training for our technicians to cap off their week of professional development.  But the primary goal is to expose a rural community to resources we can help them develop, while a large group of outsiders adds legitimacy by being part of the process.

Welcome to the village of Dhital.

In the promotional community-based dental camp, our agenda was explicitly not to save all the teeth in Dhital. This is quite a different stance than your typical health camp.  We limited patients to fifty, so that technicians would be able to properly go through the entire respectful assessment and treatment planning process they had practiced all week. We invited politicians and social leaders in Dhital to observe the treatment room and meet our field teams from other villages. All services at the camp were provided by technicians and assistants from surrounding villages while Dr. Bethy consulted on the learning from the week, lending her stature as well as her expertise. As patients came through the camp, we treated a limited number within the constraints of this approach, and then provided referrals to our partner hospital in Pokhara.  We accept these limitations because we are also laying out a pathway for Dhital to launch its own similar services.

 

 

 

 

 

 

 

I have been mulling over this quite a bit and would love to see this conversation happening out in the world.  What do you think?  How do we negotiate a racial story that has been hundreds of years in the making, and leverage it to make a more equitable world?  Surely, there are people out there ready to rip this conversation to pieces.  But we should have it.  What I see daily is that, for rural Nepali health care providers like those we train, being associated with people from California and New Zealand confers legitimacy. Hand-wringing over this is less useful than taking responsibility for these roles we’ve been cast in, and unflinchingly examining how we play them in a way that ultimately deconstructs them, chips away at the hard shell of racism and colonialism, and eventually, creates new a revised and more just theater. This is not something that happens by accident, or quickly or easily, or without mistakes.  And definitely not without calling it out in the first place.

Here’s us, having our imperfect go.

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Nepal Life, Oral Health Care Project, Work

Better Questions

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After getting our first study with UCSF-Berkeley students under our belt last winter, this year I had the chance to work more closely with the lead student, Tanya, to help design a qualitative research project I’ve been wishing someone would do for a long time: conduct focus groups in rural areas to explore people’s lived experiences of their health care.

The reason I was hoping that Tanya would use her fellowship for qualitative research is that there seems to be a lack of rigorous investigation of health practices from the perspective of populations like those we work with in Nepal. In a talk I gave at UCSF last spring, I suggested that research agendas tend to be set by institutions that are far removed from marginalized communities, even when those communities are the target of the research (a phenomenon that is, in fact, its own area of critical analysis in human rights literature – no points to me for coming up with that).

Focus group prep with students and JOHC field staff

The result is that too often, resources are directed at research that serves the researchers instead of the development of better health care structures in places like Nepal. Worse still, whether or not we realize it, academics sitting in California or Ohio or Connecticut designing research questions about people in Rupakot, Nepal, are inevitably influenced by implicit biases about rural, non-western, non-white poor people. The result is an overage of studies on things like shamanism and use of medicinal chewing branches, and a lack of documentation on what drives people to practice inadequate oral hygiene even though, in point of fact, modern hygiene products like those in your own bathroom are widely available in rural Nepal and people already know how they should be used. This bias in research then translates to poorly conceived interventions such as distribution of free dental care products and lessons on personal hygiene, even though that’s not addressing the causes of disease. From a human rights standpoint, this result is demeaning.  And the overall dynamic preserves research institutions from the voices of marginalized communities and a responsibility to legitimize non-academic perspectives.

This year Tanya and I worked together to design focus group questions that would lead to conversation among rural residents about their actual beliefs and practices around health care. In Jevaia we’ve seen through years of trial and error that understanding people’s perceptions of their resources is as important as what those resources are. The focus groups will look at how much residents feel oral disease matters and why, and try to break down the choices that villagers make about both daily hygiene and seeking of treatment services. Knowing how little up-to-date research of this kind exists in Nepal, I am really hopeful that Tanya’s study will provide a foundation for more relevant, application-oriented quantitative research in the future.

So here you have it – our focus groups! The first was actually a presentation of last year’s study to the villages where last year’s students collected the surveys, in Puranchaur and Hanspaur. Then we had a lengthy and very informative discussion with leaders and teachers from those areas about the meaning of the study results.

The second and third focus groups were in two areas where our project has completed the two year seed cycle and the clinics and school programs are continuing in the handover phase.  We did two parallel focus groups in each location, and our Jevaia field staff took roles as facilitators and note takers, which is was a great professional development experience for them (and me!).

Bharat Pokhari

Salyan

 

 

 

 

 

 

 

 

The fourth pair of focus groups was in an area where our program will soon be launching, in the district of Parbat.  Finally, the last was in an area we’ve never worked in before, called Dhital, during our promotional camp.  By this time, our facilitator Sujata and I were really in the groove…

Note taking at the Dhital focus group facilitated by Sujata

In each of these, I took a job as an official note-taker, which gave me an awesome opportunity to listen in closely to what participants had to say. I learned that there is a very high level of awareness that sweets and junk food cause oral disease, and also that parents largely feel helpless to control their children’s junk food intake. I heard some things I expected, such as that basically everyone already knows you are supposed to clean your mouth twice daily, and that products to do this are available and affordable, but that for some reason, people don’t do it anyway. Some of the groups began to get in to nuanced discussions of why that is which were totally fascinating.

Important for us, many groups talked about treatment-seeking behavior. There was categorical agreement that this only happens when there is pain that is impacting someone’s ability to function. People felt that traveling to a city was a significant burden and that proximity of services was a major determinant of what kind of treatment they would seek. There was a widespread awareness that dentistry is a vaguely dangerous and poorly regulated practice, and that you can never be certain that a provider is qualified.

A few of the groups I was in veered in to more practical brainstorming once the official “focus group” discussion was over. These conversations ranged from funding their local clinics to requesting clarification around beliefs raised in the focus group (for example, dangers of blindness from dental care). One group even asked for a proper brushing lesson, so our Sarangkot Clinic Assistant Renuka, who was acting as a note taker, got up and gave an excellent demonstration right there in the focus group!

All around, this was a GREAT learning experience for all of us, and I hope it will produce some pretty solid qualitative data on health beliefs and practices in these areas.  Super proud of our whole team, especially Muna, Gaurab and Rajendra in the office, who organized an insanely complex tapestry of logistics to to make this happen.

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Aamaa, Around Town, Earthquake, Family, Nepal Life, Oral Health Care Project, Work

Waiting Out Rain

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I’ve just arrived in Nepal, and the dust and diesel is shining on the streets of Kathmandu, stilled by summer rain.  Honestly for a whole decade I didn’t want to be here during the hot and buggy monsoon, but last summer I discovered that of course, like any season, the rainy time has a unique and indispensible magic.  The water clatters and pounds, washing everything and making us wait.  It comes down too hard to walk around or do anything.

Just wait.

It’s strange to re-enter this season which was so intense last year, when I arrived to a stunned and grieving city dotted with blue and yellow tents.  It seems that this country has basically just plugged on, absorbing the earthquake on to its pile of other messes, the unlucky people who lost the most – possessions, limbs, relatives – doing what people do: surviving.  The next day just keeps coming, and for anyone whose life wasn’t irreparably altered, that catastrophe isn’t the topic of conversation any more.

Things for me, however, have changed a lot.  When the earthquake threw us in to the ring with the big multinational agencies, it helped show our tiny staff the value of our community-level expertise.  This spring we launched our dental project in Lamjung district where we did earthquake relief.  

In the fall I also started a Master’s Degree in social work, and I’ve been able to incorporate a lot of what I’m learning in to our program right away.  Guys, seriously, a lot of this stuff I’ve been trying to explain has an entire body of theory and practice associated with it called human rights!  People are doing rights-based health care at the United Nations!  I found out I am basically an expert on rights-based dental health care in rural Nepal…WHO KNEW?!  (Who becomes an expert in that by accident?)

Ok, just wait.

Also, a few years ago, we thought we should do some baseline surveys in our villages.  Not too focused on the concept of sample sets, we thought we’d survey ALL the households…3,374 of them distributed over various hills and more hills, actually.  Because as long as you’re doing it, do it, right?  I wrote a survey with input from various people, we trained some high school students as surveyors, and just last week – 2 years later – we completed a 58-page report on this survey (thanks, Sarah Diamond!).  Come to find out there’s very little current research of this kind in Nepal, and this report is a thing.  I am taking it around like my visiting cousin and introducing it to everyone.  Here is a picture of our report.  Let’s call her Cousin Mae.  She’s in color, with pie charts and clones and everything.
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All this has come together in a very cool way.  Over the course of this year, three major U.S. Universities have developed a potential interest in partnering with us for research or medical collaboration.  It feels awesome!

So with all that in mind, this summer, I’ll be doing a few things:

  1. Visiting each of our ten clinic locations (past and present).
  2. Establishing a Rural Dentistry Coalition in Nepal to advocate for policy level recognition of our model, so that rural dental clinics can be established systemically for all villages through the national health care system (eventually).
  3. Laying groundwork for future research partnerships (hey, positive thinking!)
  4. Revisiting some of the places we did earthquake relief  (unforgettable)
  5. Planting rice with Aamaa and getting myself in to as many embarrassing situations as possible (inevitable, really).

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I am very ready for all of this following knee surgery in February.  At physical therapy, I do a warm-up each day where I put the treadmill on “maximum incline” of about 20 degrees and walk for 10 minutes.  Yay!  Now I am here and our newly launched Sindure Clinic is reached by a 5 hour hike.  That means physical therapy + dental clinic supervision at the same time.  This is not a deal you can find just anywhere, people.  Take note.  It’s not even a limited-time offer.

I’ll sign off with a few lines from a recent article in the Guardian that I really appreciated.  It can be very hard to stay motivated doing this this kind of thing, even though it’s true I sometimes get to pretend my iPhone is a grain-sifting woven pan and put it on my head, and we can reliably say it’s not a cubicle job.  But the pervasive story of the American (Social) Entrepreneur is hard to see past, with its celebration of saviorism, speed, and simplicity…as if there’s an equation to solve or a prize at the end.  But society doesn’t work that way, and often building things is just hard work.  You only stick out when you screw up; most of your ideas are 78% wrong the first 8 times, but there’s something good in there; when you disappear, that means it’s working.  If being humbled isn’t exalting, you’re in the wrong business.  I decided to tape this bit up on my door:

“I understand the attraction of working outside of the US. But don’t go because you’ve fallen in love with solvability. Go because you’ve fallen in love with complexity. Don’t go because you want to do something virtuous. Go because you want to do something difficult. Don’t go because you want to talk. Go because you want to listen.”

And then…just wait.

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